Welcome to The Lymphomaniac's Homepage

Welcome to The Lymphomaniac's Homepage
Oct 11, 2011

Life changes in an instant, and when it does, you find yourself asking yourself, and anyone who cares about you, anyone who will listen- what can you do to fight this?


I started sending out emails like this one about 3 years ago, when I was first diagnosed with Non-Hodgkins Lymphoma, a cancer for which there is treatment to slow it down, but no known cure. (Not yet, anyway.)


Back then I learned I have a ticking time bomb inside my lymphatic system. Drugs make it quiet, but no one can tell me when, or exactly how, it's coming back. There are thousands of adults and little kids just like me. I've met a lot of them- in chemo suites, hospital waiting rooms and fundraising events. We are all haunted by the same ugly monster. And we all ask…what can we do?


So we start out doing the same thing...we seek out a team of doctors who will create a plan to fight our disease. But as you may know, we all have our own stories of ups and downs from there...


Last winter, I'd been in remission from NHL for almost 2 years, when I felt enlarged nodes in my neck. I got a sinking feeling in my stomach. A huge node in my pelvis is what started this thing...I cringed at the thought of telling my wife. We came to learn that I now had a different type of blood cancer, Hodgkin's lymphoma, with the largest node, the size of a lemon, growing between my heart and my lung. Bad news- I had cancer again. Good news- the old one we believe is still in remission.


Almost six months later, I've had surgery and 11 of 12 chemo treatments. My wife has had months of taking care of me and our 3 children. I’m happy to report that my test results have been good, the tumors have shrunk, and I am starting to feel healthy again.


But if or when my first lymphoma (NHL) or, although less likely, this latest one (HL) comes back, I have one less drug in my arsenal...The most powerful drug known to fight lymphoma is also the most toxic. I've already used up the maximum allowed dose due to its potential for permanent damage to my heart if I were to use any more.


So now what?


I need your help...All those thousands of kids and other adults with leukemia and lymphoma need it, too. I fight for myself, for my wife and children, and for the faces of all those other cancer victims in my mind- some of whom, sadly, have lost their battle.


Federal funding does not come close to the amount of money needed to develop targeted therapies or to fund the clinical trials to test them. Yet, these are the efforts vitally needed to save lives. There are many studies going on right now that could provide significant breakthroughs. However, without crucial, private funding to keep them going, many of these studies will never benefit anyone.


My family and I have been walking in the LLS's annual Light the Night Walk for 10 years. The first 7 of those were in support of my wife's brother, Bobby, who is also a young dad, in remission from NHL.


It's even more personal now! I now walk in hopes that each dollar of each year will help me and him and so many others stay alive.


Last year many of you generously helped our team raise over $243,000. That was an awesome achievement that you were a crucial part of. I was touched and humbled by your generosity and for the number of people that were there in person to walk by my side, again braving the wind and rain as we crossed the Brooklyn Bridge. I am so thankful to you.


In total, The Lymphomaniacs have raised $507,000. Now, that is money with real potential for an impact. We are truly making a difference.


Today, my team and I ask for your support again. We are aggressively setting our goal this year at $300,000.


Let's beat this thing and our annual fundraising goal! With your support, we can do it.


Please join Julie, Lexi, Corie, Jake and me along with the entire Lymphomaniac team on Wednesday, October 5th for a short, yet memorable walk across the Brooklyn Bridge. Your friends and families are welcome to join or donate too! Please feel free to forward this email on. Together with perseverance and determination, we will fund a cure.


Thank you for your continued support. It means the world to me, and it will make a real difference to thousands of people with cancer.


Let's Go Lymphomaniacs!!


You can join our team or make a donation by clicking on the following link:

WWW.THELYMPHOMANIACS.COM


Please don’t forget corporate matching!


If you would like to send a check, please send to:

Michele Zellers

Senior Campaign Director, Light The Night

The Leukemia & Lymphoma Society, NYC Chapter

475 Park Avenue South, 8th Floor

New York, NY 10016

make check payable to The Leukemia & Lymphoma Society, NYC Chapter

In memo field: Lance Meyerowich LTN


Lance's Speech at the 2011 LTN Walk:

http://www.youtube.com/user/TheLymphomaniac?blend=2&ob=5#p/a/u/0/PHi7_H8hOsA


Please look for the Lymphomaniacs on Facebook:

http://www.facebook.com/pages/The-Lymphomaniacs/145388275474028


Please watch the following video of last year’s walk.

http://www.youtube.com/watch?v=_O2_QtJJCDg


The Lymphomaniacs ring the Opening Bell at the NYSE after the 2009 LTN Walk

http://www.nyse.com/events/1255602498965.html





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JOIN OUR TEAM NOW
Team Name Subteam Walk Site Date Team Captain City/State  
The Lymphomaniacs   Brooklyn Bridge 10/05/11 Lance Meyerowich New York, NY  

Supporter's Comments

  •  
    "Talk about inspiring! Wish we could walk it. Love, Nancy and Michael"
     

    Nancy Zuckerbrod

    Mon Sep 12 11:02:08 EDT 2011

  •  
    "Lance, Hope a cure can be found soon. You are remarkable person. Our prayers are with you and your family. Keep looking forward and have faith. Bill & Juanita"
     

    William & Juanita Levant Jr

    Fri Sep 16 12:42:34 EDT 2011

  •  
    "Go Lymphomaniacs! Have a great walk! "
     

    Craig & Monette Leva

    Fri Sep 30 05:02:33 EDT 2011

  •  
    "You continue to Inspire all of us by your Strength, Positivity and Resilience!"
     

    Mario Colella

    Mon Oct 03 09:14:09 EDT 2011

  •  
    "Bonni - You are a trooper and a cool chic! Rock on in your fight & walk tonight! Would also like to remember Michael Lutz!"
     

    Melissa Jones

    Wed Oct 05 06:43:18 EDT 2011

Team Fundraising Total

Goal: $300,000.00
 
196 %
Donations: $588,606.06

Donate to our Team


We are sorry donations are no longer being accepted for this team for this event.

Thanks To

Paul Touradji  
Peter Mortimer  
Daniel Lota  
Thomas Lynch  
Sandy Bernhardt  
Philip Vehec  
Christine Streeper  
David Angstreich  
Danielle Ferreira  
Matthew Fisher  
Liz and Phil Mann  
Avi Turkel  
Peter De Paola  
thomas selquist  
louis messina  
John Howell  
David Levine  
robert selzer  
Kevin Olsen  
Andrew Huseby  
Melissa Jones  
Dana Lemonier  
scott riskin  
Michele Docharty  
Jennifer Boynton  
Adam Futterman  
Sarah Sobel  
Hillary Brylka  
Cyril Goddeeris  
David Lerner  
Cory Laing  
Robert Sohr  
Mario Colella  
Vlad Barbalat  
John O'Connor  
elisa Aylward  
Stacy Selig  
Craig & Monette Leva  
Mark Doskow  
Steven Spencer  
Neil Barr  
Al & Diane celleri  
Julie & Michael Rems  
Tatiana Kotchoubey  
Stratford Dennis  
Amy and Neil Goldstein  
William Iwaschuk  
Kathryn Sweeney  
Matthew Milazzo  
john davidovich  
Donna Fortunato  
gregory gaffney  
Jonathan Shugar  
zach ablon  
Amy & David Chasen  
Bruce Naman  
marie keenan  
Marc Stenzler  
Craig Henderson  
Martin Vulliez  
Peter Rosenberg  
Kerry Hanifin  
Michael Wilburn  
Ross H. Silverman  
Lucinda and Av Bhavsar  
Adam Korn  
Cary Williams  
William & Juanita Levant ...  
Joseph Grande  
Adam & Charlotte Ronzoni  
Susie Fishman  
Randall Burkert  
Carolyn Skiffington  
Kalle Dahl  
Ronnie Wexler  
Steve and Carolyn Maresco  
adam mazur  
Susan & Mike Higgins  
Daniel DiLorenzo  
Liz & Craig Delizia  
Samer Takriti  
michael daum  
Tony Pasquariello  
susan rosenbach  
Nancy Zuckerbrod  
Donna Low  
kristen hawkins  
Julia & John Frankel  
Edward Carroll